New Zealand Brain Tumour Registry
Building a clearer picture of brain tumours in Aotearoa
A national initiative supporting clinicians, researchers, and health decision makers, while keeping patients and whānau front of mind.
University-led
Coordinated by the Centre for Brain Research at the University of Auckland, bringing academic rigour and trusted data stewardship.
National collaboration
Working alongside NANOS, the NZ Aotearoa Neuro Oncology Society, and clinical partners across the motu.
Get involved
Clinician, researcher, or whānau member: we'd love to hear from you and share our progress.
Aotearoa wide
A national registry for everyone affected
About the Registry
A national effort to understand brain tumours
The NZ Brain Tumour Registry brings together clinicians, researchers, government, and the community. We're building a coordinated system to better understand brain tumours in Aotearoa, improving care pathways and supporting research that benefits everyone.
Research rigour & data stewardship
Academic expertise and careful, ethical data handling from the Centre for Brain Research.
Patient & whānau centred
Clear, accessible, and never intimidating. Information everyone can understand.
Clinical collaboration
Connecting hospitals and health services across the country into one trusted picture.
What we do
Our core focus across the health system
The Registry supports four connected areas, from clinical care and research through to health planning and community support. Each is built on trusted, well-governed data.
Get in touch →
Clinical Care
Supporting hospitals and clinicians with data and insights to improve diagnosis, treatment, and patient outcomes.
Research & Collaboration
Enabling researchers to access data, collaborate on trials, and advance understanding of brain tumours.
Health Planning & Policy
Giving government and the health sector evidence for service planning and resource allocation.
Patient & Whānau Support
Making information accessible and supporting advocacy for patients and their whānau.
Still in development
Our journey: now, next, and beyond
Building the foundation
Establishing infrastructure, securing partnerships, engaging stakeholders, and creating a clear, trusted public presence.
Expanding access
Growing data collection, launching secure researcher access, and publishing our first reports and findings.
Interactive insights
Dashboards, real-time data visualisation, and integration with clinical workflows to support care at every level.
How we work
Built on trust, access, and collaboration
Your information, handled with care
Privacy, ethics and Māori data sovereignty are built into how the Registry is designed, not added afterwards.
Who it's for
Built for everyone affected by brain tumours
Patients & Whānau
Clear, accessible information about brain tumours and the support available, helping you understand the registry and how it works toward better outcomes for you and your whānau.
Clinicians & Researchers
A trusted platform for collaboration and data sharing. Access national data to inform clinical decisions, support research, and improve care standards.
Health Sector & Government
National insights for planning and policy: understanding brain tumour burden, identifying service gaps, and planning for better outcomes.
Reports & updates
Findings and insights from the Brain Tumour Registry
Our first publications are on the way. Check back soon, or get in touch to be notified when they're released.
National Data Overview
Our first national summary of brain tumour epidemiology: case numbers, demographics, and outcomes across Aotearoa.
🗓 Expected 2027
Research Collaboration Guide
How to partner with the registry for research, clinical trials, and quality improvement projects.
🗓 Expected 2027
Service Planning Brief
Evidence for the health sector: brain tumour burden, geographic distribution, and service recommendations.
🗓 Expected 2027
News & insights
Latest from the Registry
Establishing a national brain tumour registry
How the Centre for Brain Research and partners are building the foundations for a coordinated national registry across Aotearoa.
How registry data drives better care
From diagnosis to outcomes: a look at how well-governed national data helps clinicians and planners improve brain tumour care.
Working alongside NANOS
Our partnership with the NZ Aotearoa Neuro Oncology Society and what it means for neuro-oncology research and care.
Built through collaboration
The Registry is hosted by the Centre for Brain Research at the University of Auckland and works with NANOS, hospital services and research groups across Aotearoa. Every decision about the data is overseen by governance groups that include clinicians, researchers, Māori data experts and people with lived experience of a brain tumour.
NANOS
NZ Aotearoa Neuro Oncology Society
Clinical Partners
Hospitals & health services
Research Community
Universities & institutes
NANOS
NZ Aotearoa Neuro Oncology Society
Clinical Partners
Hospitals & health services
Research Community
Universities & institutes
Who oversees the Registry
Four groups share responsibility for how information is collected, protected and used. Each one has a say before any data leaves the Registry.
Steering Group
Sets strategy, approves policies and signs off every data-access decision.
Clinical Advisory Group
Specialists nominated through NANOS who own the data dictionary and service feedback.
Māori Data Governance Rōpū
Applies Te Tiriti and Māori data sovereignty principles to every request that could affect Māori.
Consumer and Whānau Advisory Group
People with lived experience who review every public report and patient resource.
Want to follow our progress or get involved?
Get in touch →Stay updated
Subscribe for registry news, reports, and milestones as they're released.
Get in touch
We'd love to hear from you
General enquiries
Questions about the registry, data access, or how we can support you?
info@nzbtr.org.nzResearch collaboration
Interested in partnering on research or accessing registry data?
research@nzbtr.org.nz