Registry reports & updates
Registry reports, findings and insights
All registry reports, from national data overviews to guidance for researchers and planners, are listed here. Our first publications are in preparation: browse what is coming, and subscribe to be told when new registry reports are released.
National Data Overview
Our first national summary of brain tumour epidemiology: case numbers, demographics, and outcomes across Aotearoa.
Report library
Registry reports and briefings
Filter registry reports by type. Each report opens on its own page with a summary, the full text and, once released, a PDF download.
National Data Overview
Our first national summary of brain tumour epidemiology: case numbers, demographics, and outcomes across Aotearoa.
π Expected 2027
Research Collaboration Guide
How to partner with the registry for research, clinical trials, and quality improvement projects.
π Expected 2027
Service Planning Brief
Evidence for the health sector: brain tumour burden, geographic distribution, and service recommendations.
π Expected 2027
How we publish
Careful, consistent, open
Data close-off
Each report draws on a defined data period that is closed and quality-checked before any analysis begins.
Analysis & review
Findings are analysed by the Registry team and reviewed by clinical advisors and the MΔori data governance group.
Open publication
Reports are released here in accessible formats, with small numbers suppressed to protect privacy.
Researcher access
Approved researchers can apply for secure access to de-identified Registry data for ethically approved studies and quality improvement projects.
Apply for access βMedia & information requests
Journalists and organisations can request background information, interviews or data summaries from the Registry team.
Contact the media team βLatest updates
News from the Registry
Establishing a national brain tumour registry
How the Centre for Brain Research and partners are building the foundations for a coordinated national registry across Aotearoa.
How registry data drives better care
From diagnosis to outcomes: a look at how well-governed national data helps clinicians and planners improve brain tumour care.
Working alongside NANOS
Our partnership with the NZ Aotearoa Neuro Oncology Society and what it means for neuro-oncology research and care.
Good to know
Questions about our reports
If you cannot find what you need, get in touch and we will point you in the right direction.
Ask a question β
When will the first report be published?
The National Data Overview is expected in 2027, once the first full period of national data has been collected, checked and reviewed by the governance group.
Will findings be available by region?
Yes, where numbers allow. Regional breakdowns will be published whenever they can be reported without identifying individuals.
How are small numbers protected?
Counts below a defined threshold are suppressed or grouped, in line with the statistical disclosure guidance used across the health sector.
Can I request a specific analysis?
Requests for tailored analyses can be made through the contact page. They are considered by the governance group and prioritised alongside the Registry's publication programme.