✉  info@nzbtr.org.nz

📍  Centre for Brain Research, University of Auckland

New Zealand Brain Tumour Registry emblem
Research 🗓 Expected 2027

Research Collaboration Guide

How to partner with the registry for research, clinical trials, and quality improvement projects.

Prepared by NZ Brain Tumour Registry
Research Collaboration Guide cover: partnering on research, trials and quality improvement

About this guide

The Research Collaboration Guide will explain how researchers, clinicians and organisations can work with the Registry: what data is available, how to apply for secure access, and what the governance group looks for in an application.

What it will cover

  • The application and ethics process, step by step
  • The national data dictionary and available variables
  • Secure access arrangements and data-sharing agreements
  • Expectations for Māori data governance and community benefit
  • How findings are reviewed before publication

Timing

The guide is expected in 2027, alongside the launch of secure researcher access.


More reports

Other publications

National Data Overview cover: one of the first registry reports, on brain tumour epidemiology across Aotearoa
Registry data

National Data Overview

Our first national summary of brain tumour epidemiology: case numbers, demographics, and outcomes across Aotearoa.

🗓 Expected 2027

Research Collaboration Guide cover: partnering on research, trials and quality improvement
Research

Research Collaboration Guide

How to partner with the registry for research, clinical trials, and quality improvement projects.

🗓 Expected 2027

Service Planning Brief cover: brain tumour burden and service distribution
Planning

Service Planning Brief

Evidence for the health sector: brain tumour burden, geographic distribution, and service recommendations.

🗓 Expected 2027